Overview and Terms of Use
HealthiVibe, a division of CorEvitas, LLC (“Company” or “HealthiVibe”) is the designer, owner, and administrator of this survey. This Survey Privacy Policy describes the way in which the Company collects, uses, maintains, and discloses information collected from participants in the survey. We take personal privacy very seriously and are committed to protecting your privacy.
Types of Information We Collect
In the course of taking our survey, we may collect personal information which includes medical or diagnostic data, such as conditions and comorbidities. To the extent permitted by applicable law, we may use, process, transfer, and store this information in an anonymous (or pseudonymous) and aggregated manner. This information is collected to help our clients gain a better understanding of patient perceptions, attitudes, and preferences related to disease, treatment options, trial participation, etc., to help our clients, among other things, to improve the patient experience.
In addition, with your explicit consent, we may ask for and collect personally identifiable information such as name, phone number, mailing address, and email address. We strictly utilize this information for the purpose explicitly stated in the survey, which may include one or more of the following:
- Conducting follow-up interviews on behalf of our clients;
- Providing information about the study after completion;
- Reaching out to you with additional clinical trial participation opportunities in areas of therapeutic interest.
In all cases, personally identifiable data is stored separately from medical or diagnostic data shared with clients. Medical data records are linked to personal data through the use of a non-identifiable patient code. Access to personal data is strictly controlled and restricted to authorized HealthiVibe project staff.
HealthiVibe may also collect non-personal information about the device utilized to access the survey. This may include information about your browser and operating system versions, device manufacturer, referral address, and access time, but will not include your device’s IP (Internet Protocol) address. We use this information to monitor and improve the quality of our surveys and to provide general statistics regarding use of our services. The information is maintained in our system logs for analytical purposes to improve our web pages or track for quantitative research data analytics. The logs may be kept indefinitely and used at any time and in any way necessary to prevent a security breach and to ensure the integrity of the data on our servers.
Our surveys may use ‘cookies.” Cookies are small text files stored directly on your device. These files are used for purposes of maintaining certain aspects of session state between online survey visits and are not used to track user activity or for any other purpose.
HealthiVibe has security in place to protect any collected personally identifiable information to prevent access to and misuse of that information or its loss or alteration.
Personally identifiable details of any collected data records are stored in encrypted form in a secure environment. Access to these records is restricted to authorized HealthiVibe project personnel only.
We implement strong security measures to protect personal or sensitive data collected. Although unlikely, if we experience a data breach or incident, we will take immediate action to stop the breach, mitigate any harm, communicate with all stakeholders impacted, and work closely with our partners to ensure any notifications follow applicable laws.
Sharing your Personal Information with Third Parties
We may disclose personal information that HealthiVibe has collected or that was provided by you to:
- Contractors and other third parties (i.e., recruitment, technology, or supporting business operations) utilized to support our business (third parties are bound by contractual obligations to keep personal information confidential and use it only for the purposes for which we disclose the information).
- Comply with any court ordered, law or legal process, including to respond to any government or regulatory request.
- Protect and defend the rights of property of HealthiVibe (including the enforcement of our agreements).
- Act in urgent circumstances to protect the personal safety of users or the public.
- And for any other purpose disclosed by us when you provide the information and your consent.
HealthiVibe is liable for inappropriate transfers of personal data to third parties. HealthiVibe complies with the General Data Protection Regulation (GDPR) through the use of European Union (EU) Commission-approved standard contractual clauses and/or on the basis of another transfer mechanism permitted under the GDPR.
In certain situations, HealthiVibe may be required to disclose personal information in response to lawful requests by public authorities, including to meet national security or law enforcement requirements. Additionally, HealthiVibe is subject to the investigatory and enforcement powers of the Federal Trade Commission (FTC).
De-identified data collected as part of this survey, including responses to demographic questions, will be retained for analytic purposes and to provide insight on patient perspectives to our client.
Personal information collected on your behalf for the purpose of receiving study information or to participate in follow-up interviews will be retained until the conclusion of the project or until the requested information is available and has been provided, whichever is later.
Personal information collected on your behalf for the purpose of requesting additional clinical trial opportunities or other information outside the current study will be retained until such time as you request its removal.
You may contact HealthiVibe at any time to request removal and use of any and all personal data whether or not you have previously consented to its use.
Disclosures of Personal Information
Personal information may be shared within HealthiVibe and with third parties only when such information sharing is specifically outlined in our project plan developed with the client.
HealthiVibe does not sell, trade, or rent personally identifiable information to any third parties.
On an exceptional basis, we may disclose personal information for the following reasons:
- When there is reasonable belief disclosure is required by law, including information requested by means of subpoena and court order.
- To report what appears to be illegal or fraudulent conduct to law enforcement authorities.
- If HealthiVibe at any point transfers assets or operations in connection with a sale, merger, bankruptcy, or other transaction, we may transfer personally identifiable information to the acquiring or merging entity. If so, we will make all reasonable efforts to require that personally identifiable information remains subject to essentially the same protections as contained in this Survey Privacy Policy.
Your Personal Informational Rights
You have the right to access, modify, or delete any personally identifiable information stored by HealthiVibe, and to withdraw consent for its use at any time, without charge. Subject to applicable law, you also have the right to (i) restrict HealthiVibe’s use of other information that constitutes your personal information and (ii) lodge a complaint with your local data protection authority.
Requests may be made by mail, phone, or email, using the contact information below.
HealthiVibe is committed to resolving any complaints about our collection or use of your personal information. EU individuals with inquiries or complaints regarding this Survey Privacy Policy or our compliance with the GDPR should first contact HealthiVibe at:
Mail:
Data Protection Officer
c/o Chief Information Officer
HealthiVibe, a division of CorEvitas, LLC
4201 Wilson Boulevard, #110-321
Arlington, VA 22203
Phone:
866.961.6400
Email:
privacy@healthivibe.com
International Regulatory Compliance
HealthiVibe complies with all recommendations and guidelines of the GDPR. As an additional safeguard and in response to the invalidation of the International Safe Harbor framework, and in order to prevent transfer of personal information from the EU to the US, HealthiVibe stores all personally identifiable information on EU-based servers in Frankfurt, Germany. The project team has strictly controlled and compartmentalized access to the data, as does the server administration team. Prior to project execution, HealthiVibe also abides by each country’s data regulations and implements projects accordingly.
It is not anticipated that personal information will be transferred from the EU to the US; HealthiVibe has further committed to cooperate with the panel established by the EU data protection authorities (DPAs) with regard to unresolved data protection complaints concerning any data that may be transferred to the US from the EU.
In the case that personal data is transferred from the EU to the US for commercial purposes, HealthiVibe protects such data consistent with EU Commission-approved standard contractual clauses and/or on the basis of another transfer mechanism permitted under the GDPR. Participants are informed about the risks associated with the transfer of personal data as part of the consent process.
This Survey Privacy Policy is effective as of 09MAR2021 and may be updated periodically in light of changing business and legal requirements. We encourage you to review the Survey Privacy Policy prior to responding to any survey.